Just Diagnosed With a Thyroid Nodule? What They Don't Tell You on Day One
If you've just been told you have a thyroid nodule — or thyroid cancer — you're probably sitting with more fear than facts right now. Most patients are handed a referral and left to fill in the blanks alone, often without ever hearing the basic odds that would change how frightening this moment feels.
In this solo episode, I'm sharing what I wish someone had told me on the day I was diagnosed.
🎧 We're covering:
The real odds — what percentage of thyroid nodules are actually benign
Why nodules are so common, and why most people never know they have one
What your ultrasound results mean (the TIRADS system)
What a biopsy result actually tells you, and how reliable a benign result really is
Why a diagnosis doesn't automatically mean surgery — from active surveillance to non-surgical ablation
My own diagnosis story, and what happened when my nodule was dismissed for years
My own nodule was found by accident, dismissed by my ENT, and left untreated until it grew large enough to cause daily breathing and swallowing trouble. Radiofrequency ablation ultimately shrank it by 90% — no surgery, no lost thyroid.
If you're sitting with a new diagnosis, this episode is for you.
"Well, better get it taken out."
That was the entire conversation after my thyroid biopsy. Then I waited six weeks for pathology — six weeks so frightening I didn't tell my own parents, and spent researching cancer treatments for a disease I didn't have.
Not one person told me that most thyroid nodules are benign.
If you've just been told you have a thyroid nodule, this episode is the information nobody handed me. No guest this week — just the conversation I wish someone had sat down and had with me on day one.
In this episode:
✅ The number nobody gives you — 90 to 95 out of every 100 thyroid nodules are benign, according to the American Thyroid Association
✅ What happens if it is cancer — why papillary thyroid cancer is one of the slowest-growing and most treatable that exists
✅ Why more than half of adults have a thyroid nodule and never know it
✅ What your ultrasound is actually measuring — risk features and TIRADS categories, not a diagnosis
✅ The Bethesda system explained, and how reliable a benign biopsy result really is
✅ Why a nodule diagnosis does not automatically mean surgery
✅ Active surveillance, radiofrequency ablation, microwave ablation, and other non-surgical options
✅ My own story — the nodule that grew to 4.5 x 7 cm, the years I lost to "take it out or leave it alone," and the outpatient procedure that shrank it by 90% and left my thyroid intact
It's okay to be scared. But you should know the odds are genuinely in your favor.
📚 Sources referenced:
American Thyroid Association — Clinical Thyroidology for the Public, December 2017
American Thyroid Association — Statement on ablation techniques for benign thyroid nodules, Thyroid, 2023
MedlinePlus Medical Encyclopedia
📌 Resources:
👉 Podcast: https://www.saveyourthyroidwithjen.com/
👉 Patient site: https://www.saveyourthyroid.org/
👉 Physician Finder — specialists in 50+ countries: https://www.saveyourthyroid.org/find-a-physician/
👉 Private FB group: https://www.facebook.com/groups/saveyourthyroidnonsurgical
👉 Patient Navigation: https://www.saveyourthyroidwithjen.com/patient-navigation-services/
💛 Support the show:
PAYPAL: https://www.paypal.com/paypalme/itsmejenagain
VENMO: https://account.venmo.com/u/itsme_jenagain
⚠️ This podcast is for informational purposes only and is not a substitute for professional medical advice. No endorsement is given or implied for any specific product, treatment, or physician mentioned. Always consult with a qualified healthcare professional regarding your individual medical needs.
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I found out I had a thyroid nodule because
my OBGYN stopped mid-sentence during
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00:00:04,702 --> 00:00:07,184
an appointment that had nothing to do with
my thyroid.
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00:00:07,562 --> 00:00:08,923
He looked at my neck and said,
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00:00:08,923 --> 00:00:13,956
I see a lump. That was it. He referred me
to an imaging center for an ultrasound.
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00:00:14,275 --> 00:00:18,048
I had that ultrasound and then a biopsy at
the same imaging center.
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00:00:18,048 --> 00:00:20,080
And when the radiologist finished the
biopsy,
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his exact words to me were, well,
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00:00:22,371 --> 00:00:25,193
better get it taken out. That was the
entire conversation.
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00:00:25,193 --> 00:00:27,988
Then I waited for what seemed like
forever.
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00:00:27,988 --> 00:00:32,452
The whole ordeal from the initial
discovery to getting my actual pathology
results
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00:00:32,452 --> 00:00:36,052
back was around six weeks. In those weeks,
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00:00:36,052 --> 00:00:37,683
I didn't even tell my parents.
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00:00:37,683 --> 00:00:38,784
I was that scared.
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00:00:38,980 --> 00:00:42,531
I spent hours researching cancer treatment
because as far as I knew,
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00:00:42,531 --> 00:00:44,534
that's what thyroid nodules meant.
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00:00:44,534 --> 00:00:47,914
Cancer treatment, the whole frightening
picture.
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00:00:47,914 --> 00:00:51,087
I called a friend who'd just been through
lymphoma treatment,
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00:00:51,087 --> 00:00:53,208
hoping that she could reassure me,
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00:00:53,208 --> 00:00:57,249
and she tried, but she didn't know the
statistics on thyroid nodules either.
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Why would she? That wasn't her diagnosis.
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00:01:00,020 --> 00:01:03,983
And honestly, she sounded worried for me
But my friend wasn't the problem.
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00:01:03,983 --> 00:01:04,983
The doctors were.
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00:01:05,533 --> 00:01:10,747
Nobody in a white coat told me that most
thyroid nodules are benign.
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That's information they should have had.
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They just didn't hand it to me.
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00:01:15,050 --> 00:01:18,605
When my results finally came back and I
sat down with an ENT,
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he was dismissive about it. His words
were:
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So what? You have a lump in your throat.
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We can take it out or leave it alone,
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whatever. He never even acknowledged that
I'd just spent six weeks terrified.
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And when I asked why I had nodules in the
first place,
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he didn't seem to have an answer and
didn't seem to think it mattered.
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I never went back to him. I tell you all
of that because I run
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a community with thousands of thyroid
patients now,
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00:01:42,895 --> 00:01:47,576
and I watch that exact same spiral happen
to someone pretty much every week.
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They're diagnosed, handed a referral,
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00:01:50,507 --> 00:01:54,338
and left to fill in the blanks with fear
and Google for weeks on end,
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because nobody hands them the actual odds.
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I'm Jennifer Holkem And before you spend
tonight the way I spent those weeks,
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00:02:01,664 --> 00:02:04,819
I want to give you the information nobody
gave me.
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Here's the question everyone actually
wants answered,
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but is almost afraid to ask their doctor
directly.
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00:02:10,333 --> 00:02:14,225
Is this going to kill me? So let's just
answer it and then we'll back
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00:02:14,225 --> 00:02:18,453
up and explain why. somewhere between 90
and 95 out of every
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00:02:18,453 --> 00:02:21,563
100 thyroid nodules found are benign.
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00:02:21,839 --> 00:02:25,382
That's not a hopeful guess. That's the
statistical reality
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00:02:25,582 --> 00:02:29,545
for the overwhelming majority of people
watching this video right now,
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according to the American Thyroid
Association.
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00:02:32,187 --> 00:02:35,310
And for the smaller group where it does
turn out to be cancer.
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00:02:35,310 --> 00:02:37,343
Specifically papillary thyroid cancer,
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which is the most common type by far.
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00:02:39,069 --> 00:02:41,831
Here's the second thing almost nobody
tells you up front.
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Papillary thyroid cancer is one of the
slowest growing.
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00:02:45,153 --> 00:02:47,575
Most treatable cancers that exists.
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00:02:47,575 --> 00:02:52,738
More than 95% of adults diagnosed with it
are alive at the five-year mark.
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00:02:52,738 --> 00:02:55,699
when it's caught while still confined to
the thyroid,
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that number climbs even higher,
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00:02:57,961 --> 00:03:01,423
according to the data reported by major
cancer centers.
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00:03:01,423 --> 00:03:04,966
Some doctors will tell you that if you had
to choose a cancer diagnosis,
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this is the one you'd want to pick.
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00:03:06,826 --> 00:03:11,879
Now please understand, I am not saying
that to minimize anyone's diagnosis.
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The word cancer is still the C word and
your fear is valid.
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I'm saying it because panic causes people
to make fast,
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fear-driven decisions, and this is a
disease that almost always gives
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you time to make a good decision instead.
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00:03:27,298 --> 00:03:31,117
Let's start with the fact that nodules are
just so common in the first place.
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00:03:31,117 --> 00:03:34,448
By some estimates, if you scanned every
adult's neck with
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00:03:34,448 --> 00:03:38,309
a high resolution ultrasound, more than
half would come back with
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a nodule somewhere in there. Some
estimates go as high as 80% of people have
thyroid
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00:03:43,320 --> 00:03:44,320
nodules.
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Most people just never find out because
many nodules never cause a symptom
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and never get looked for.
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That's usually how it happens,
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00:03:50,866 --> 00:03:55,019
right? rarely does someone find a lump and
march into the doctor's office.
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It's the routine physical, the CT scan for
back pain,
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or after a car accident, and there it is,
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00:04:01,085 --> 00:04:05,119
an incidental finding, or sometimes we
call them incidentalomas.
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00:04:05,312 --> 00:04:08,834
One sentence buried in a radiology report
that suddenly becomes
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00:04:08,834 --> 00:04:10,694
the only sentence you can think about.
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00:04:10,694 --> 00:04:14,927
So the first thing that happens after a
nodule is found is usually an ultrasound,
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00:04:14,927 --> 00:04:16,378
if you haven't already had one.
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00:04:16,378 --> 00:04:18,986
The ultrasound isn't diagnosing cancer,
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00:04:18,986 --> 00:04:22,369
it's assessing risk features, the size,
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00:04:22,369 --> 00:04:24,970
shape, borders, and calcifications.
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00:04:24,970 --> 00:04:29,583
Based on those features, radiologists sort
nodules into risk categories.
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00:04:30,017 --> 00:04:33,338
Most commonly using something called the
TIRADS system.
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00:04:33,338 --> 00:04:36,519
This is usually where people start feeling
like they're reading a foreign language.
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00:04:36,519 --> 00:04:42,542
You get a report back with words like
hypoechoic and irregular margins and a
number,
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00:04:42,542 --> 00:04:46,923
and no one has explained what any of it
means or how worried you should be.
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00:04:46,923 --> 00:04:51,415
That gap between getting the report and
actually understanding it is where most
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00:04:51,415 --> 00:04:52,585
of the anxiety lives.
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00:04:52,721 --> 00:04:55,421
If the risk features and the size warrant
it,
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the next step is usually a fine needle
aspiration,
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00:04:58,102 --> 00:05:02,664
a biopsy. A small needle sample is taken
from the nodule and read
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00:05:02,664 --> 00:05:07,185
by a pathologist and sorted into what's
called a Bethesda category.
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00:05:07,185 --> 00:05:09,066
These are numbered one through six.
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00:05:09,066 --> 00:05:14,787
Bethesda II is benign. Bethesda 6 is
diagnostic of malignancy.
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00:05:14,787 --> 00:05:16,497
A benign result comes back.
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00:05:16,709 --> 00:05:21,431
In up to 80% of biopsies. And according to
the American Thyroid Association,
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00:05:21,431 --> 00:05:25,763
the risk of that benign result actually
being wrong of missing a cancer
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is generally less than 3%, and even lower
when the biopsy is reviewed
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00:05:30,586 --> 00:05:33,807
by an experienced pathologist at a major
medical center.
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00:05:33,941 --> 00:05:36,032
The biopsy day is usually the hardest day,
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00:05:36,032 --> 00:05:38,682
honestly. Not because the procedure is
painful,
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00:05:38,682 --> 00:05:42,303
it's actually quick, but because it's when
things start to get real.
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00:05:42,303 --> 00:05:45,583
And then there's a wait, sometimes days,
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00:05:45,583 --> 00:05:46,905
sometimes over a week,
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00:05:46,905 --> 00:05:48,964
for the results. And the wait is real.
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00:05:48,964 --> 00:05:50,885
If you're in that wait right now,
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00:05:50,885 --> 00:05:53,955
I see you. Once you have a Bethesda
category,
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00:05:53,955 --> 00:05:56,546
you have a much clearer picture of your
actual risk.
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00:05:57,069 --> 00:06:01,501
And this is the point where most people
don't realize how many paths
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00:06:01,501 --> 00:06:05,543
are actually open to them. This is the
part I wish people knew on day one.
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00:06:05,543 --> 00:06:10,151
A thyroid nodule diagnosis, even certain
cancer diagnoses,
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00:06:10,151 --> 00:06:13,232
does not automatically mean surgery.
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00:06:13,232 --> 00:06:15,974
It doesn't mean losing your thyroid.
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00:06:15,974 --> 00:06:19,696
It doesn't mean a scar, a lifetime of
thyroid hormone replacement,
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00:06:19,696 --> 00:06:21,456
and a recovery you didn't choose.
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Depending on the size, the Bethesda
category,
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symptoms, and how the nodule is behaving,
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treatment options can include active
surveillance,
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00:06:30,083 --> 00:06:33,986
meaning monitoring with regular
ultrasounds and doing nothing else unless
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00:06:33,986 --> 00:06:37,847
it changes, or for nodules causing
symptoms or growth,
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00:06:37,847 --> 00:06:43,271
minimally invasive non-surgical treatments
like radio frequency ablation,
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00:06:43,271 --> 00:06:47,304
microwave ablation, and other non-surgical
ablation techniques.
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where a probe destroys the nodule through
the skin with no incision done
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on an outpatient basis and your home the
same day.
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00:06:55,447 --> 00:06:57,671
Want to go deeper on a specific option?
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Non-surgical treatments are explained in
the playlists linked below.
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This part isn't secondhand for me.
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00:07:03,875 --> 00:07:06,448
That nodule from my own diagnosis,
132
00:07:06,448 --> 00:07:10,220
the one the ENT shrugged off, didn't
actually stay small.
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00:07:10,220 --> 00:07:12,683
Over the next few years and through a
pregnancy,
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00:07:12,683 --> 00:07:13,683
it grew.
135
00:07:13,483 --> 00:07:17,435
By the time I finally acted, it measured
roughly four and a half
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00:07:17,435 --> 00:07:21,936
by seven centimeters, around sixty five to
seventy five milliliters in volume.
137
00:07:21,936 --> 00:07:24,538
I was living with daily trouble breathing,
138
00:07:24,538 --> 00:07:27,300
trouble swallowing, choking on food,
139
00:07:27,300 --> 00:07:29,641
being unable to lie flat at night,
140
00:07:29,641 --> 00:07:33,122
waking up choking, dizziness when I turned
my head,
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00:07:33,122 --> 00:07:37,904
and exhaustion. And what I'd later learn
was actual hypoxia,
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00:07:37,904 --> 00:07:39,455
not getting enough oxygen.
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00:07:39,674 --> 00:07:43,895
I used to describe my quality of life
during that stretch as being in the
garbage.
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00:07:43,895 --> 00:07:48,017
this tipping point came after an allergic
reaction to some antibiotics,
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00:07:48,017 --> 00:07:51,089
which caused the nodule to hemorrhage
internally and nearly double
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00:07:51,089 --> 00:07:55,811
in size overnight. That's when I finally
went looking for something other than take
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00:07:55,811 --> 00:07:59,932
it out or leave it alone. And that's how I
found radio frequency ablation.
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00:08:00,241 --> 00:08:03,103
I had the procedure. I went home the same
day.
149
00:08:03,103 --> 00:08:08,015
And within a week, my quality of life had
already improved dramatically.
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00:08:08,015 --> 00:08:11,097
Over the following months, as the nodule
gradually shrank,
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00:08:11,097 --> 00:08:12,779
ultimately by 90%,
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00:08:14,076 --> 00:08:15,076
everything kept getting better.
153
00:08:14,956 --> 00:08:19,138
My thyroid stayed intact. My raspy voice
improved.
154
00:08:19,138 --> 00:08:21,441
The procedure changed my life.
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00:08:21,441 --> 00:08:23,141
It's the reason that I do this.
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00:08:23,202 --> 00:08:27,455
I've since talked to people with nodules
much larger than mine who've actually
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00:08:27,455 --> 00:08:30,827
had the same outcome. This isn't a fluke.
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00:08:30,827 --> 00:08:33,948
It's minimally invasive medical
innovation.
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00:08:33,948 --> 00:08:36,800
These aren't fringe experimental
treatments either.
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00:08:36,800 --> 00:08:41,232
Ablation techniques have been used and
refined internationally for years
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00:08:41,233 --> 00:08:44,965
and are increasingly available in the US
at centers with physicians trained
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specifically in these procedures.
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00:08:46,766 --> 00:08:51,500
In fact, the American Thyroid Association
itself has published formal guidance
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00:08:51,500 --> 00:08:55,583
on the safe performance and training
standards for thyroid ablation.
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00:08:55,583 --> 00:08:59,946
That's how firmly it's become a part of
mainstream recognized care.
166
00:08:59,946 --> 00:09:03,249
And by the way, there is a billing code
for insurance too.
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00:09:03,249 --> 00:09:06,388
Not everyone qualifies for every option.
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00:09:06,388 --> 00:09:08,739
Your case is genuinely your case.
169
00:09:08,740 --> 00:09:12,592
And this video isn't a substitute for your
own doctor's read on your scans.
170
00:09:12,592 --> 00:09:17,774
But too many people are told thyroid
nodule and immediately assume surgery
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00:09:17,774 --> 00:09:22,237
is the only road, when for a large number
of people it simply isn't
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00:09:22,237 --> 00:09:25,028
the only road anymore and oftentimes
shouldn't be.
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00:09:25,191 --> 00:09:28,160
So here's the honest full picture stitched
back together.
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00:09:28,160 --> 00:09:29,901
Most thyroid nodules are benign.
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00:09:29,901 --> 00:09:31,462
Of the cancers that are found,
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00:09:31,462 --> 00:09:35,915
the most common type is one of the slowest
and most treatable that there is.
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00:09:35,915 --> 00:09:37,376
And even when treatment is needed,
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00:09:37,376 --> 00:09:40,617
surgery is one option on a much longer
menu,
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00:09:40,617 --> 00:09:44,179
not the automatic default. None of that
erases the fear of hearing
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00:09:44,179 --> 00:09:48,159
we found something. But replacing that
fear with facts can be liberating.
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00:09:48,160 --> 00:09:52,293
It's okay to be scared, but you should
know the odds are genuinely in your favor.
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00:09:52,293 --> 00:09:54,617
if you're sitting with a new diagnosis
right now,
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00:09:54,617 --> 00:09:58,511
you don't have to figure out the next step
by yourself at 2 a.m.
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00:09:58,511 --> 00:10:03,624
with Google or Chat GPT. That's exactly
why the Save Your Thyroid community
exists.
185
00:10:03,624 --> 00:10:07,829
It's a place built by and for people
who've walked this exact path.
186
00:10:07,997 --> 00:10:10,988
Who've been helped by physicians who
specialize in a full range
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00:10:10,988 --> 00:10:14,610
of treatment options. It's a community
physicians themselves respect
188
00:10:14,690 --> 00:10:18,610
and refer patients to. It's not just
something for patients to stumble upon.
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00:10:18,610 --> 00:10:22,962
On our community website, you can find our
Physician Finder map with specialists
190
00:10:22,962 --> 00:10:25,151
in over 50 countries linked below,
191
00:10:25,151 --> 00:10:28,503
along with the Facebook community where
you can ask real questions
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00:10:28,503 --> 00:10:29,872
and get real answers.
193
00:10:29,873 --> 00:10:30,873
If someone you love just got this news,
send them this video. It's the one I wish
someone had sent to me.
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00:10:30,063 --> 00:10:32,053
people who've been exactly where you are.
195
00:10:32,053 --> 00:10:34,976
And if you want to hear my own diagnosis
story in full,
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00:10:34,976 --> 00:10:38,560
what I chose and why, that's linked below
too.
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00:10:38,560 --> 00:10:42,202
I built this community because I needed it
and it didn't exist yet.
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00:10:42,202 --> 00:10:44,294
Now it does. Come join us.
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00:10:44,783 --> 00:10:46,925
If someone you love just got this news,
200
00:10:46,925 --> 00:10:50,599
send them this video. It's the one I wish
someone had sent to me.
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